Supporting the Community About the Foundation
Our vision is to advance medical research with the foremost objective being to find a cure for CASK gene mutations and associated conditions related to CASK.
I know when I first was told the genetic cause of my daughter Angelina’s brain abnormalities it initially..
Your support and contributions will enable us to facilitate research improving the quality of life for children and adults diagnosed with the Cask Gene mutations.
ACNRF have partnered with RARE-X to drive a Data Collection Program for CASK and related conditions.
Early intervention is specialised support for children which aims to promote a child’s development, family and child’s wellbeing and assisting the child to take part in their community.
By registering we will let you know of up and coming research projects and events you can participate in for the purpose of raising awareness and funds in finding a Cure.
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