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AUSTRALIA

Therapies

All kids need is a little help, a little hope, and someone who believes in them.”

– Magic Johnson.

CASK Families around the world have travelled to Virginia Tech Carilion Research Institute,(“VT”) US, to participate in an intensive therapy program. An analysis led by Stephanie C. DeLuca and Konark Mukherjee, Assistant Professors at the Virginia Tech Carilion Research Institute, provides that intensive therapy supports skills and abilities that sometimes takes years.[1] Please click on this article link for more information.


Below are some links to family stories who have attended VT and shared their experiences:

Intensive Therapies in Australia

Some places include:

 

Types of Individual Therapies that may assist:

  • Physiotherapy
  • Occupational Therapy
  • Speech Therapy
  • Music Therapy
  • Feeding Therapy
  • Feldenkrais therapy
  • Horse-riding
  • Water therapies.
 
[1] VTCRI News https://vtnews.vt.edu/articles/2018/03/neuromotor-vtcri-132018.html1.0

Some Videos of what therapy may look like:

Physiotherapy

Occupational Therapy

Water Therapy

“In some ways, that CASK-linked pathology is degenerative in nature provides a positive outlook. Because microcephaly in CASK-linked pathology progresses postnatally, there may be a temporal window when therapeutic intervention might prevent or slow further brain cell loss. Regression, even in adolescence, has also been observed in some cases of MICPCH [119], again offering the tantalizing possibility that a therapeutic approach might prevent such decline under conditions when degeneration is known to progressThe potential benefits of intervention might extend even further given that non-cell-autonomous toxicity could also affect functioning of the remaining neurons; reduction of such toxicity, especially when coupled with high-intensity rehabilitative measures [120], might offer real hope for a positive impact on functional outcomes.”   

https://www.mdpi.com/2073-4409/11/7/1131/htm